Adapting

A few years ago, we were sitting in a doctor's office hearing our son pronounced "autistic" for the very first time.  The diagnosis didn't change anything about our child, but it changed everything about how we parented him.  It was the dreaded label that made us stop trying to push our square peg child into a round hole, to look around for the square hole where he fit.  We tried the team sport thing, signing him up for soccer.  He loved to kick the ball around our yard and could score goals, but once he got on the field with 15 other preschoolers, he wanted no part of it.  Now he goes bowling and is taking adapted swim lessons.  We tried to get him to say the words we so desperately wanted to hear. Then we posted pictures and visual schedules all over the house and relied on the form of communication he was comfortable with.  (And now he uses words more than ever; nothing delights me more than hearing him argue with his brother about who put their seatbelt on first or when he tells me he loves me.)  We adapted, because that's what people do.

It happens in a million small ways every day.  You make little changes because of your husband's allergy.  You change your schedule to fit another person's availability.  You stop doing certain things to support the health of someone else.  We were shocked when we met a couple whose kids had severe peanut allergies.  We wondered what they ate, since I am currently making 5 or 6 PB&Js a day now that the kids are home.  They just shrugged and said, "Not peanut butter?"  We adapt for the ones we love, and we don't even give it a second thought.

I certainly hadn't sat down and catalogued all the ways we have changed to suit our family, to make sure our son is successful.  Not until we heard Dan Habib speak about inclusion earlier this spring.  Because, well, our son doesn't attend the school closest to our house; he attends the school with the best program and teacher to meet his needs.  We don't go to the library closest to our house, where we'd signed up for cards and attended story time when he was a baby.  Not after being discouraged from bringing our child with special needs there and "disrupting" the employees and other patrons.  (Don't worry, a letter was written.)  Now we go to the library one town over whose employees smile when they see us and don't bat an eye at a little excess noise from the child flapping in the middle of the room.  And on and on, the places we don't go and the people we don't see and the things we do now that we didn't used to do, all for the sake of making life easier for our son and putting his needs first.  All of which I would gladly do over and none of which is meant to sound like a complaint.  (Except the librarians.  They were jerks.)

But there is one thing we haven't had to compromise and adapt, and that is church.  We go to the church we want to go to, the church we chose over the big one nearby with the special needs ministry and the air-conditioned sanctuary.  I'd like to say that it was the pastor's terrific sermons or the music (that is sometimes a little too loud--but that's what noise-cancelling headphones were made for) or the programs....but it's not.  It's because of the people.  It's because the first person I met there, as I nervously accompanied my son to the children's class, was a woman named Carol.  And there are some people who really try to be accepting and accommodating (which is FINE by the way, because it's infinitely better than the people who reject and ridicule) but Carol is one of those amazing people who just accept what is.  And she taught the class and she included James when she could and then the children played and she sat beside me and talked to me.  She asked me about myself and my son and she told me about the kindergartners she'd taught and I just felt so completely welcomed.  There are people who teach children and get the job done, and then there are people who are so obviously gifted at what they do, and she is one of them.

Soon we met other families and they all took one look and wrapped their arms around our family.  They asked how James could be included and what we needed, and honestly, I didn't have many answers, because I had no idea what it would look like for him to participate in a lesson or enjoy going to church.  And one time, I was telling a dad named Jay what is hard for James and what he doesn't like, and Jay said, "So what does James like?"  And I felt a surge of gratitude for the chance to focus on the positive for once, something that seems rare for families with special needs.  It took some time and it took some adjustments, but James loves church now.  He is still different, he still stands out from his neurotypical peers, but as far as I know, he is accepted by the other kids.  I try to take the chances that I'm given to explain his behaviors and his peculiarities to them, to demystify why it's okay for James to leave the room or bounce on a ball when everyone else is expected to sit and listen.

This is what the world should be like.  Especially at church, people should be embraced and accepted no matter what their differences and limitations.  We shouldn't pause for a moment to make changes and adapt, because love should govern our lives.  And when we love people, nothing seems unreasonable or audacious.