On Community (not the TV show)

It was supposed to be an uneventful morning.  It was supposed to be relaxing.  But who am I kidding, when is my life ever uneventful?  I got the big boys ready and off to school and then it was time to take the littlest one to the library for story time.  We are enjoying these quiet times together and exploring what he likes independent of his brothers and their dominating interests.  But we didn't just play with the trains and sing songs with Miss Renee.  This morning we met Katie and Scotty.  We were minding our business when Scotty came over to play with Mikey.  He had been reading books with his mom, but decided to get on the floor instead.  Mikey didn't want to share, which made Scotty cry and run back to his mom.  I thought to myself, there is something going on there, and moments later she confirmed.  Scotty was recently diagnosed with a Sensory Processing Disorder and his mom suspects further testing will reveal an Asperger's diagnosis.  He just started therapy and there is so much to work on, she said.  I nodded sympathetically.  I KNOW.  And then I said, "My oldest son is on the autism spectrum."  Words I used to avoid.  Words that brought me to tears every time I said them out loud.  But look at me now!  Casually telling this stranger about my special child.   Because we are part of the same community.

She wanted to talk more.  She told me about her family, how they are not supportive, how they undermine her when her son goes there for the weekend.  So I told her, "You are the mom.  You know your child, you know what he needs.  So do it.  It is hard, and sometimes it takes a really long time to see any progress from it.  But you'll do it."  She nodded and said, "I really needed to hear that."  Katie, I KNOW.  I needed to hear it too.  Sometimes I still need to hear it.  There are a ton of different ways to parent, to be a good mom, and you need to trust yourself that the way you have chosen is correct.  You need to be reminded that your son isn't bad, he's just special.  And that means the way you parent him will have to be special.  You will do it because it's your job.  You will do it because, although this isn't the child you thought you would raise, it's the child that you have, and he's amazing.  It gets easier to see the amazing and stop focusing on the problems as you go.

Can I just say how much more desirable it is to be the one saying "It gets better" than to be the one hearing it? This keeps happening to me, these opportunities to meet newly diagnosed kids and their caregivers, and every time it takes me back (almost five years now) to those days of fear.  I treated my son's diagnosis like all hard things in my life to that point:  I hid.  I buried the truth inside and pulled away. Fear and shame have isolated me for so much of my life, and this was no different.  I was afraid of what people would say, how they would treat us if they knew.  But my silence and my secrets have hurt me deeply.  And so finally I took a chance and reached out.  It was around this time that I met Mandy, who is not part of the special needs community, but took me under her wing and brought me to a literal Village who accepted my whole family in a way I'd never experienced before.  And because of these people teaching me about community, about give and take, about showing up with your mess and letting them wash it clean, about forging a family independent of blood or marriage, I can tell Katie what she needs to hear.  I can be the lifeline that I once needed.  I can offer camaraderie and turn a library into sacred space.

Glennon Melton of Momastery.com says that we belong to each other.  This is true of moms, of special needs families, of PEOPLE.  We need each other.  We need all of our experiences, we need all of the answers we have found, we need encouragement and support and a thousand times over we need to LOVE.  If you are in hiding, COME OUT.  We need your story, we need your passion.  And we just might hold the keys that will set you free.